Bedtime and Food (related to Minecraft support and Preferences conversation)
jenb
Hi Everyone,
I would like to ask for some ideas regarding some new doctor information and medical problems that were bad enough to have him hospitalized this week. Due to two medical conditions, Tommy is not supposed to have gluten, dairy or sugar, including all fruit except grapefruit. He really is supposed to eat mostly meat and vegetables which he does not really want. Tommy is somewhat interested in smoothies and drink supplements but not so much. He is also supposed to be asleep early, like 8 pm.
Up to this point, Tommy has been shopping and eating what he selects plus bits of whatever I cook. He also goes to sleep around 10:30 to 11 pm.
Any ideas how we can gradually move toward the new food and bed guidelines? I am a bit stumped partly because I am emotional about his health situation. He is so happy with his program but I have seen that he is paying a price for it. Outside of buckets of medication, diet and sleep seem to be ways that he can affect his health if he chooses...
Thanks in advance,
Jen Brown in Sag harbor
I would like to ask for some ideas regarding some new doctor information and medical problems that were bad enough to have him hospitalized this week. Due to two medical conditions, Tommy is not supposed to have gluten, dairy or sugar, including all fruit except grapefruit. He really is supposed to eat mostly meat and vegetables which he does not really want. Tommy is somewhat interested in smoothies and drink supplements but not so much. He is also supposed to be asleep early, like 8 pm.
Up to this point, Tommy has been shopping and eating what he selects plus bits of whatever I cook. He also goes to sleep around 10:30 to 11 pm.
Any ideas how we can gradually move toward the new food and bed guidelines? I am a bit stumped partly because I am emotional about his health situation. He is so happy with his program but I have seen that he is paying a price for it. Outside of buckets of medication, diet and sleep seem to be ways that he can affect his health if he chooses...
Thanks in advance,
Jen Brown in Sag harbor
Pam Sorooshian
On Mon, May 6, 2013 at 7:52 PM, jenb <busyemailing@...> wrote:
is how long they sleep that matters.
-pam
[Non-text portions of this message have been removed]
> Outside of buckets of medication, diet and sleep seem to be ways that heWhat difference can it possibly make what time someone goes to sleep - it
> can affect his health if he chooses...
>
is how long they sleep that matters.
-pam
[Non-text portions of this message have been removed]
Vicki Dennis
I am curious what illness allows only grapefruit. I am more accustomed to
seeing grapefruit prohibited even when other fruit may be allowed in small
amounts. Willing to share?
How old is he? Were you told he needed a certain number of hours (and they
backcounted from that assuming he had to be awake a certain time for
"school") or specifically said 8 pm?
vicki
seeing grapefruit prohibited even when other fruit may be allowed in small
amounts. Willing to share?
How old is he? Were you told he needed a certain number of hours (and they
backcounted from that assuming he had to be awake a certain time for
"school") or specifically said 8 pm?
vicki
On Mon, May 6, 2013 at 9:52 PM, jenb <busyemailing@...> wrote:
> **
>
>
> Hi Everyone,
>
> I would like to ask for some ideas regarding some new doctor information
> and medical problems that were bad enough to have him hospitalized this
> week. Due to two medical conditions, Tommy is not supposed to have gluten,
> dairy or sugar, including all fruit except grapefruit. He really is
> supposed to eat mostly meat and vegetables which he does not really want.
> Tommy is somewhat interested in smoothies and drink supplements but not so
> much. He is also supposed to be asleep early, like 8 pm.
>
> Up to this point, Tommy has been shopping and eating what he selects plus
> bits of whatever I cook. He also goes to sleep around 10:30 to 11 pm.
>
> Any ideas how we can gradually move toward the new food and bed
> guidelines? I am a bit stumped partly because I am emotional about his
> health situation. He is so happy with his program but I have seen that he
> is paying a price for it. Outside of buckets of medication, diet and sleep
> seem to be ways that he can affect his health if he chooses...
>
> Thanks in advance,
> Jen Brown in Sag harbor
>
>
>
[Non-text portions of this message have been removed]
Joyce Fetteroll
On May 6, 2013, at 10:52 PM, jenb wrote:
Because of lawsuits and such, many doctors will tend to be very conservative with their recommendations. There may be more wiggle room than they've suggested.
Right now after the hospitalization crisis you may be focused on the doctors' recommendations as like a magic talisman. If you follow what they said scrupulously, it may feel like you can ward off the evil demons. But their knowledge may not be up to date or may be focused on the western tendency to treat the symptoms rather than the underlying cause.
Joyce
[Non-text portions of this message have been removed]
> Due to two medical conditions, Tommy is not supposed to have gluten,How much research have you done yourself on his conditions? Are there alternatives? What happens -- you don't need to tell us but as a question to ask yourself -- if he eats some of these? If his body shuts down, that's a very different situation than getting a rash or getting constipated. Find out how much experimentation he can do so he can find what works for him. (And it's likely his body will keep changing as he grows so what's true today may not be true next month or next year.)
> dairy or sugar, including all fruit except grapefruit.
Because of lawsuits and such, many doctors will tend to be very conservative with their recommendations. There may be more wiggle room than they've suggested.
Right now after the hospitalization crisis you may be focused on the doctors' recommendations as like a magic talisman. If you follow what they said scrupulously, it may feel like you can ward off the evil demons. But their knowledge may not be up to date or may be focused on the western tendency to treat the symptoms rather than the underlying cause.
> He really is supposed to eat mostly meat and vegetables which he does not really wantHow about cooking together? Instead of looking at what he can't have, focus on what he can and explore the possibilities. Explore ethnic foods. What about rice based products and other gluten substitutes?
Joyce
[Non-text portions of this message have been removed]
Joyce Fetteroll
On May 6, 2013, at 10:52 PM, jenb wrote:
Do some research with him. Draw him into the process of finding out more about it. Don't hand him information, but share share questions with him, listen to his questions. Then find answers, including him as much as he wants. (He may be more interested in a summary of what you're finding.)
Joyce
[Non-text portions of this message have been removed]
> I am a bit stumped partly because I am emotional about his health situation.And likely he's picking that up. It can help hugely to focus on what you have to work with rather than what you don't. If there were a sudden food crisis and all that was available was meat and vegetables, you could embrace the possibilities or you could dwell on all the foods you could no longer have.
Do some research with him. Draw him into the process of finding out more about it. Don't hand him information, but share share questions with him, listen to his questions. Then find answers, including him as much as he wants. (He may be more interested in a summary of what you're finding.)
> He is so happy with his program but I have seen that he is paying a price for it.Happy as in relieved this is the answer to avoid another hospital visit? Or happily enjoying it? What price is he paying? This isn't clear.
Joyce
[Non-text portions of this message have been removed]
lucy.web
On 7 May 2013, at 04:52, jenb wrote:
If you have a friendly butcher you can probably get chicken carcasses (think they're called 'chicken backs' in the U.S) and chicken necks and heads free or very cheap, as they are usually wasted.
It sounds a lot of faff but is actually quite easy and doesn't take long. The resulting stock/broth is apparently especially nutritious because it has things like gelatine from the bones. It's used a lot in natural therapies for treating a wide range of illness.
My daughters love to have things like plain noodles, rice, pasta etc cooked in this broth. It doesn't look an awful lot different to rice/pasta/noodles cooked in water, but they do now prefer the taste when it's cooked with the stock.
I think this is a great way for them to get the nourishment of the meat and veggies from the stock, while eating the plain carb meals that they love.
Lucy
[Non-text portions of this message have been removed]
> He really is supposed to eat mostly meat and vegetables which he does not really want.Every week or so I make a chicken broth/stock which is basically chicken bones simmered for several hours in a huge pan of water with herbs, spices and some vegetables such as leeks, carrots, onions, garlic. I add plenty of fat (butter) to the pan because then when it's finished I strain it and decant it into glass jars which keep for ages in the fridge. The fat forms an airtight layer on the top keeping it fresh, and can be discarded when using each jar.
If you have a friendly butcher you can probably get chicken carcasses (think they're called 'chicken backs' in the U.S) and chicken necks and heads free or very cheap, as they are usually wasted.
It sounds a lot of faff but is actually quite easy and doesn't take long. The resulting stock/broth is apparently especially nutritious because it has things like gelatine from the bones. It's used a lot in natural therapies for treating a wide range of illness.
My daughters love to have things like plain noodles, rice, pasta etc cooked in this broth. It doesn't look an awful lot different to rice/pasta/noodles cooked in water, but they do now prefer the taste when it's cooked with the stock.
I think this is a great way for them to get the nourishment of the meat and veggies from the stock, while eating the plain carb meals that they love.
Lucy
[Non-text portions of this message have been removed]
Melanie Campanis
Well, I think it can make a difference - though I am surprised if these are
allopathic doctors suggesting this schedule. Even my grandmother used to
say an hour's sleep before midnight is worth two after midnight and I never
could understand that! Having been studying a lot of alternative health
modalities over the past 7 months I think I am understanding that it has to
do with circadian rhythms of the body and you are more in balance with
nature when you set your sleep patterns to the natural availability of
daylight. Think of if we didn't have electricity - we'd all be going to bed
earlier!
From: [email protected] [mailto:[email protected]]
On Behalf Of Pam Sorooshian
Sent: Tuesday, May 07, 2013 1:48 AM
To: [email protected]
Subject: Re: [AlwaysLearning] Bedtime and Food (related to Minecraft support
and Preferences conversation)
On Mon, May 6, 2013 at 7:52 PM, jenb <busyemailing@...
<mailto:busyemailing%40gmail.com> > wrote:
is how long they sleep that matters.
-pam
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
allopathic doctors suggesting this schedule. Even my grandmother used to
say an hour's sleep before midnight is worth two after midnight and I never
could understand that! Having been studying a lot of alternative health
modalities over the past 7 months I think I am understanding that it has to
do with circadian rhythms of the body and you are more in balance with
nature when you set your sleep patterns to the natural availability of
daylight. Think of if we didn't have electricity - we'd all be going to bed
earlier!
From: [email protected] [mailto:[email protected]]
On Behalf Of Pam Sorooshian
Sent: Tuesday, May 07, 2013 1:48 AM
To: [email protected]
Subject: Re: [AlwaysLearning] Bedtime and Food (related to Minecraft support
and Preferences conversation)
On Mon, May 6, 2013 at 7:52 PM, jenb <busyemailing@...
<mailto:busyemailing%40gmail.com> > wrote:
> Outside of buckets of medication, diet and sleep seem to be ways that heWhat difference can it possibly make what time someone goes to sleep - it
> can affect his health if he chooses...
>
is how long they sleep that matters.
-pam
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Sandra Dodd
-=-Tommy is not supposed to have gluten, dairy or sugar, including all fruit except grapefruit. He really is supposed to eat mostly meat and vegetables which he does not really want. Tommy is somewhat interested in smoothies and drink supplements but not so much. He is also supposed to be asleep early, like 8 pm.-=-
"Supposed to" literally... a doctor supposes you will do exactly what the doctor says.
"Mostly meat"�does that include eggs, beans, nuts? Fish?
-=- meat and vegetables-=-
Mashed potatoes with tuna or salmon mixed in?
Maybe find a group of moms (not here, because it's getting off topic) to help you brainstorm food ideas, and don't think of it as forever, and don't think of it as something you "have to do," because one doctor makes a recommendation. But after the first bit of responses here, ask other places for more detailed ideas, please.
Supposed to be in bed early *probably* was recommended with the assumption that he "had to" get up early and go to school. Go by how many hours, not by what time on the clock.
Sandra
Sandra
[Non-text portions of this message have been removed]
"Supposed to" literally... a doctor supposes you will do exactly what the doctor says.
"Mostly meat"�does that include eggs, beans, nuts? Fish?
-=- meat and vegetables-=-
Mashed potatoes with tuna or salmon mixed in?
Maybe find a group of moms (not here, because it's getting off topic) to help you brainstorm food ideas, and don't think of it as forever, and don't think of it as something you "have to do," because one doctor makes a recommendation. But after the first bit of responses here, ask other places for more detailed ideas, please.
Supposed to be in bed early *probably* was recommended with the assumption that he "had to" get up early and go to school. Go by how many hours, not by what time on the clock.
Sandra
Sandra
[Non-text portions of this message have been removed]
Sandra Dodd
-=-Think of if we didn't have electricity - we'd all be going to bed
earlier!-=-
If we were farmers and serfs we would be going to bed earlier.
There were always people who stayed up to guard, whether it was a caveman cave or a castle or a small walled city. As towns became less walled, and more spread out, there were and still are people up being guards (policemen, sheriffs, night watchmen of all sorts) and doctors, nurses, bakers...
It's not "unnatural" for people to be awake in the dark. But when someone is waking people up as soon as it gets light so that they can work in fields, build pyramids, get the sails up on the ship and scrub the decks... then for them going to sleep early is the only hope for health.
Sandra
[Non-text portions of this message have been removed]
earlier!-=-
If we were farmers and serfs we would be going to bed earlier.
There were always people who stayed up to guard, whether it was a caveman cave or a castle or a small walled city. As towns became less walled, and more spread out, there were and still are people up being guards (policemen, sheriffs, night watchmen of all sorts) and doctors, nurses, bakers...
It's not "unnatural" for people to be awake in the dark. But when someone is waking people up as soon as it gets light so that they can work in fields, build pyramids, get the sails up on the ship and scrub the decks... then for them going to sleep early is the only hope for health.
Sandra
[Non-text portions of this message have been removed]
Meredith
"Melanie Campanis" <melanie@...> wrote:
You can force yourself to live on a day/night cycle that doesn't really work for you - people do, but the big driver is what time you wake up. You wake up earlier to make yourself more tired - which isn't particularly healthy and generally people living on a schedule that doesn't work for them will be more tired overall, have a harder time getting to sleep, and compensating for that one way or another.
---Meredith
>Think of if we didn't have electricity - we'd all be going to bedHaving lived without electricity I can say with a fair degree of confidence that night-owls are still night-owls and morning people are still morning people even in those conditions. There's this thing called fire, you see...
> earlier!
You can force yourself to live on a day/night cycle that doesn't really work for you - people do, but the big driver is what time you wake up. You wake up earlier to make yourself more tired - which isn't particularly healthy and generally people living on a schedule that doesn't work for them will be more tired overall, have a harder time getting to sleep, and compensating for that one way or another.
---Meredith
Bernadette Lynn
On 7 May 2013 13:38, Melanie Campanis <melanie@...> wrote:
That very much depends on where you live. If we woke with the sun and went
to bed with it we'd be getting a maximum of four hours of sleep at
midsummer and closer to 20 at midwinter. People in this part of the world
have been staying up later than the sun for many thousands of years longer
than we've had electricity.
If we're going to bed by the clock we're overriding our own individual
circadian rhythm.
Bernadette.
[Non-text portions of this message have been removed]
> Think of if we didn't have electricity - we'd all be going to bed==========================
> earlier!
>
That very much depends on where you live. If we woke with the sun and went
to bed with it we'd be getting a maximum of four hours of sleep at
midsummer and closer to 20 at midwinter. People in this part of the world
have been staying up later than the sun for many thousands of years longer
than we've had electricity.
If we're going to bed by the clock we're overriding our own individual
circadian rhythm.
Bernadette.
[Non-text portions of this message have been removed]
Meredith
"jenb" <busyemailing@...> wrote:
It sounds like what you're asking is how to get him to choose what you want him to choose - how to get him to the right answer, in a sense. That's a good setup for conflict, not easing in to something... and that's not going to be good for health either.
Look for ways to expand his options rather than constrain them. Really do a bunch of research into different food theories - even things like Chinese medicine and Ayurveda, since those include ideas about what and how to eat for maximum health - and look for things which could appeal to your guy.
And rather than thinking "either/or" consider that diet And medication may give you the widest range of options with the least frustration. Your son might prefer medication! And if it's the less stressful option from his perspective, that's going to make a difference in terms of his health - physical, emotional and spiritual.
---Meredith
> Outside of buckets of medication, diet and sleep seem to be ways that he can affect his health if he chooses...****************
It sounds like what you're asking is how to get him to choose what you want him to choose - how to get him to the right answer, in a sense. That's a good setup for conflict, not easing in to something... and that's not going to be good for health either.
Look for ways to expand his options rather than constrain them. Really do a bunch of research into different food theories - even things like Chinese medicine and Ayurveda, since those include ideas about what and how to eat for maximum health - and look for things which could appeal to your guy.
And rather than thinking "either/or" consider that diet And medication may give you the widest range of options with the least frustration. Your son might prefer medication! And if it's the less stressful option from his perspective, that's going to make a difference in terms of his health - physical, emotional and spiritual.
---Meredith
Sandra Dodd
-=-If we woke with the sun and went
to bed with it we'd be getting a maximum of four hours of sleep at
midsummer and closer to 20 at midwinter. -=-
Older houses have serious wooden shutters from the inside, so people can sleep with the sun shining. I already wake up earlier than I would like sometimes, but when I visit England and Scotland, it gets light WAY, way early. People adapt.
To assume that everyone is like we are where we live (whever that is and whoever "we" are) is called ethnocentrism, and I suppose in this case it's more latitude-centrism. :-) In Hawaii and India, days and nights are about the same length.
Look, New Delhi: http://www.timeanddate.com/worldclock/astronomy.html?n=176
Sunset the same time two days in a row. It takes a week for sunset to be three minutes later.
Meanwhile, in Edinburgh, two minutes a day: http://www.timeanddate.com/worldclock/astronomy.html?n=304
Singapore is close to the equator. Their sunset doesn't change for a week:
http://www.timeanddate.com/worldclock/astronomy.html?n=236
Those things are fun to think about. Half an hour difference, in Singapore, between their earliest sunrise and latest, so their daytime will always be about 12 hours.
In Antarctica, six months, six months.
People who stay in caves a while still sleep.
People living on the space station still sleep.
There are ideas about "self regulation" here: http://sandradodd.com/control
And this story, which a friend sent me. I've seen it various places, but I like this simple telling of it:
One zen student said, "My teacher is the best. He can go days without eating."
The second said, "My teacher has so much self control, he can go days without sleep."
The third said, "My teacher is so wise that he eats when he's hungry and sleeps when he's tired."
Sandra
[Non-text portions of this message have been removed]
to bed with it we'd be getting a maximum of four hours of sleep at
midsummer and closer to 20 at midwinter. -=-
Older houses have serious wooden shutters from the inside, so people can sleep with the sun shining. I already wake up earlier than I would like sometimes, but when I visit England and Scotland, it gets light WAY, way early. People adapt.
To assume that everyone is like we are where we live (whever that is and whoever "we" are) is called ethnocentrism, and I suppose in this case it's more latitude-centrism. :-) In Hawaii and India, days and nights are about the same length.
Look, New Delhi: http://www.timeanddate.com/worldclock/astronomy.html?n=176
Sunset the same time two days in a row. It takes a week for sunset to be three minutes later.
Meanwhile, in Edinburgh, two minutes a day: http://www.timeanddate.com/worldclock/astronomy.html?n=304
Singapore is close to the equator. Their sunset doesn't change for a week:
http://www.timeanddate.com/worldclock/astronomy.html?n=236
Those things are fun to think about. Half an hour difference, in Singapore, between their earliest sunrise and latest, so their daytime will always be about 12 hours.
In Antarctica, six months, six months.
People who stay in caves a while still sleep.
People living on the space station still sleep.
There are ideas about "self regulation" here: http://sandradodd.com/control
And this story, which a friend sent me. I've seen it various places, but I like this simple telling of it:
One zen student said, "My teacher is the best. He can go days without eating."
The second said, "My teacher has so much self control, he can go days without sleep."
The third said, "My teacher is so wise that he eats when he's hungry and sleeps when he's tired."
Sandra
[Non-text portions of this message have been removed]
jenb
Hi Vicki,
2 tick borne illnesses.
After years of research and treatments for our whole family, avoiding sugar seems to be about the only thing a lot of practitioners agree upon to make a difference.
Grapefruit , lime and lemon are on the good-to-eat list. All others have too much sugar and fiber issues...
Re. sleep, the neurologists unanimously say to get a lot. I can tell when Tommy wakes up refreshed...and often he does not.
Tommy is almost 6.
Jen
2 tick borne illnesses.
After years of research and treatments for our whole family, avoiding sugar seems to be about the only thing a lot of practitioners agree upon to make a difference.
Grapefruit , lime and lemon are on the good-to-eat list. All others have too much sugar and fiber issues...
Re. sleep, the neurologists unanimously say to get a lot. I can tell when Tommy wakes up refreshed...and often he does not.
Tommy is almost 6.
Jen
--- In [email protected], Vicki Dennis <vicki@...> wrote:
>
> I am curious what illness allows only grapefruit. I am more accustomed to
> seeing grapefruit prohibited even when other fruit may be allowed in small
> amounts. Willing to share?
>
> How old is he? Were you told he needed a certain number of hours (and they
> backcounted from that assuming he had to be awake a certain time for
> "school") or specifically said 8 pm?
>
> vicki
>
>
>
> [Non-text portions of this message have been removed]
>
jenb
Hi Joyce,
=I have gathered alot of information, attended Western Connecticut State College seminars on tick-borne illnesses in addition to numerous seminars by a variety of health practitioners. I am on newsletter lists with the latest treatments, etc.
We also have experimented with his diet. His primary symptom is seizures. I have seen him have a seizure with consumption of alot of ice cream or candy. Could be a coincidence but it looks suspicious to me and worth avoiding.
=
=
=
I need to cook more with him. I am not good at it at all. I realize this might just be the best time in my life to learn, so thank you for the suggestion. I have to get excited about it ..
Jen
>=
> How much research have you done yourself on his conditions? Are there alternatives? What happens -- you don't need to tell us but as a question to ask yourself -- if he eats some of these? If his body shuts down, that's a very different situation than getting a rash or getting constipated. Find out how much experimentation he can do so he can find what works for him. (And it's likely his body will keep changing as he grows so what's true today may not be true next month or next year.)
>
=I have gathered alot of information, attended Western Connecticut State College seminars on tick-borne illnesses in addition to numerous seminars by a variety of health practitioners. I am on newsletter lists with the latest treatments, etc.
We also have experimented with his diet. His primary symptom is seizures. I have seen him have a seizure with consumption of alot of ice cream or candy. Could be a coincidence but it looks suspicious to me and worth avoiding.
=
=
>=
> How about cooking together? Instead of looking at what he can't have, focus on what he can and explore the possibilities. Explore ethnic foods. What about rice based products and other gluten substitutes?
=
I need to cook more with him. I am not good at it at all. I realize this might just be the best time in my life to learn, so thank you for the suggestion. I have to get excited about it ..
Jen
jenb
> > I am a bit stumped partly because I am emotional about his health situation.==He is happy shopping for twizzlers, lolly pops, apples, yogurt, crackers, grilled cheese. He likes his old diet and frowns when offered meat and vegetables. The price is the relapse that appears to happen from sugar consumption. He never eats just one piece of candy or one blueberry. He eats the entire carton or a bouquet of lollypops - one of every color.
>
> And likely he's picking that up. It can help hugely to focus on what you have to work with rather than what you don't. If there were a sudden food crisis and all that was available was meat and vegetables, you could embrace the possibilities or you could dwell on all the foods you could no longer have.
>
> Do some research with him. Draw him into the process of finding out more about it. Don't hand him information, but share share questions with him, listen to his questions. Then find answers, including him as much as he wants. (He may be more interested in a summary of what you're finding.)
>
> > He is so happy with his program but I have seen that he is paying a price for it.
>
> Happy as in relieved this is the answer to avoid another hospital visit? Or happily enjoying it? What price is he paying? This isn't clear.
>
We do deviate from "the diet" but he is also in a rut now. So, maybe I'm making mistakes...
I love what you suggested here. Tommy loves a puzzle and that is what this is. He loves to research together and figure things out. I'm just too foggy to see that now. And now is the key. Not future projections that make me despondent or nervous.
So, thank you for focusing on all that we can eat!!
Maybe we can plant a little garden...
====
Jen
Schuyler
It is possible that buckets of medication is a better and more efficacious route to take than imposing a strict dietary regime and sleep schedule. It may help if you honestly weigh that option into your mix of choices.
Schuyler
________________________________
Schuyler
________________________________
>>Outside of buckets of medication, diet and sleep seem to be ways that he can affect his health if he chooses...[Non-text portions of this message have been removed]
>>Thanks in advance,
>>Jen Brown in Sag harbor
Vicki Dennis
Does he wake on his own or do you wake him? Does he have "blackout"
curtains so that he is not susceptible to having light disturb him?
If he were able to sleep 12 hours at night (10:30 pm to 10:30 am) then
perhaps still do an afternoon rest/or nap (blackout curtains can help there
also) he might be able to log 14 hours daily which is not excessive even
for a healthy 5 year old.
Observe, experiment..........what are the environmental differences when he
wakes refreshed or not? How many hours continuous sleep, combined hours,
last eaten, weather, light conditions? Does he have a snack available so
that if he awakens after 5-6 hours he can eat and drink and perhaps go back
to sleep?
It is frightening when a child has been urgently hospitalized but I also
agree with others that you need to take time to do your own research and
look for extra opinions and support groups. The less common or more
controversial (like Lyme) the disease the more likely the experts are
flying by the seat of their pants! Particularly when they give you hard
and fast rules without explaining why they apply to your child.
Does he have an appetite at all? Is he growing? Somewhere near expected
height and weight for age and family history?
"Look" healthy? Have energy at least on refreshed days?
If he has enjoyed picking out is foods, perhaps you can experiment with him
as to whether a particular food causes some issue even 48 hours later.
Unless the hospitalization was for truly life threatening issues, take
changes very slowly. He can get "lots" of sleep going to bed at 10:30 to
11............it's up to you to provide an environment where he can do so.
Changing a diet is a very personal and intimate endeavor. Don't try to do
it all at once....and don't make it into a long list of "you cannot
have".
vicki
curtains so that he is not susceptible to having light disturb him?
If he were able to sleep 12 hours at night (10:30 pm to 10:30 am) then
perhaps still do an afternoon rest/or nap (blackout curtains can help there
also) he might be able to log 14 hours daily which is not excessive even
for a healthy 5 year old.
Observe, experiment..........what are the environmental differences when he
wakes refreshed or not? How many hours continuous sleep, combined hours,
last eaten, weather, light conditions? Does he have a snack available so
that if he awakens after 5-6 hours he can eat and drink and perhaps go back
to sleep?
It is frightening when a child has been urgently hospitalized but I also
agree with others that you need to take time to do your own research and
look for extra opinions and support groups. The less common or more
controversial (like Lyme) the disease the more likely the experts are
flying by the seat of their pants! Particularly when they give you hard
and fast rules without explaining why they apply to your child.
Does he have an appetite at all? Is he growing? Somewhere near expected
height and weight for age and family history?
"Look" healthy? Have energy at least on refreshed days?
If he has enjoyed picking out is foods, perhaps you can experiment with him
as to whether a particular food causes some issue even 48 hours later.
Unless the hospitalization was for truly life threatening issues, take
changes very slowly. He can get "lots" of sleep going to bed at 10:30 to
11............it's up to you to provide an environment where he can do so.
Changing a diet is a very personal and intimate endeavor. Don't try to do
it all at once....and don't make it into a long list of "you cannot
have".
vicki
On Tue, May 7, 2013 at 10:52 PM, jenb <busyemailing@...> wrote:
> **
>
>
>
> Re. sleep, the neurologists unanimously say to get a lot. I can tell when
> Tommy wakes up refreshed...and often he does not.
>
> Tommy is almost 6.
>
> Jen
>
>
> --- In [email protected], Vicki Dennis <vicki@...> wrote:
> >
> > I am curious what illness allows only grapefruit. I am more accustomed to
> > seeing grapefruit prohibited even when other fruit may be allowed in
> small
> > amounts. Willing to share?
> >
> > How old is he? Were you told he needed a certain number of hours (and
> they
> > backcounted from that assuming he had to be awake a certain time for
> > "school") or specifically said 8 pm?
> >
> > vicki
> >
>
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
>
>
[Non-text portions of this message have been removed]
BRIAN POLIKOWSKY
Jen,
If your son is waking up tired because he did not get enough hours of sleep I suggest you make sure his room is dark enough and quiet in the morning so he does not wake up before he is ready.
What matters is how much sleep and not what time he went to bed.
Alex Polikowsky
[Non-text portions of this message have been removed]
If your son is waking up tired because he did not get enough hours of sleep I suggest you make sure his room is dark enough and quiet in the morning so he does not wake up before he is ready.
What matters is how much sleep and not what time he went to bed.
Alex Polikowsky
[Non-text portions of this message have been removed]
Anna-Marie
Haven't posted here before, but felt compelled to toss my two cents in
on this issue:
I think it's highly unlikely that 'buckets of medication' is a
better/more efficacious route. I am saying this as someone who has spent
the past four years on a gluten/sugar/dairy free diet (due to serious
health problems), and I have also spent the past year tapering off
prescription medication.
I think that you can provide food alternatives in the home that can
replace the foods your son is better off avoiding. Example: Replacing
milk with almond milk, wheat flour with brown rice flour, butter with
coconut oil, wheat bread with gluten-free bread, sugar with stevia and
xylitol. There's even a wonderful coconut milk-based 'ice cream' that's
sugar-free! There is a way to work around the limitations so that it
doesn't feel like deprivation to him. It might take some extra time, and
a bit of trial and error on your part. You might even consider giving
these things up yourself if you are going to have him avoid them. I
think many people could avoid serious health issues by avoiding these
three things. As far as medication, I would recommend trying almost
anything before resorting to it. Many medications do nothing but mask
symptoms, kill your liver in the process, and leave your body less able
to fend off whatever it is it's trying to fend off. That's not ALWAYS
the case, but many times I've found that it is.
Anna-Marie
on this issue:
I think it's highly unlikely that 'buckets of medication' is a
better/more efficacious route. I am saying this as someone who has spent
the past four years on a gluten/sugar/dairy free diet (due to serious
health problems), and I have also spent the past year tapering off
prescription medication.
I think that you can provide food alternatives in the home that can
replace the foods your son is better off avoiding. Example: Replacing
milk with almond milk, wheat flour with brown rice flour, butter with
coconut oil, wheat bread with gluten-free bread, sugar with stevia and
xylitol. There's even a wonderful coconut milk-based 'ice cream' that's
sugar-free! There is a way to work around the limitations so that it
doesn't feel like deprivation to him. It might take some extra time, and
a bit of trial and error on your part. You might even consider giving
these things up yourself if you are going to have him avoid them. I
think many people could avoid serious health issues by avoiding these
three things. As far as medication, I would recommend trying almost
anything before resorting to it. Many medications do nothing but mask
symptoms, kill your liver in the process, and leave your body less able
to fend off whatever it is it's trying to fend off. That's not ALWAYS
the case, but many times I've found that it is.
Anna-Marie
On Wed, 2013-05-08 at 05:35 +0100, Schuyler wrote:
>
> It is possible that buckets of medication is a better and more
> efficacious route to take than imposing a strict dietary regime and
> sleep schedule. It may help if you honestly weigh that option into
> your mix of choices.
>
> Schuyler
>
> ________________________________
>
> >>Outside of buckets of medication, diet and sleep seem to be ways
> that he can affect his health if he chooses...
>
> >>Thanks in advance,
> >>Jen Brown in Sag harbor
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
Joyce Fetteroll
> I have seen him have a seizure with consumption of alot ofWorth avoiding for who? Until *he's* ready to avoid it, then it isn't worth it to him.
> ice cream or candy. Could be a coincidence but it looks
> suspicious to me and worth avoiding.
And his body is growing and changing. If he feels it's worth avoiding now, that doesn't mean he can't ever have it.
> The price is the relapse that appears to happen from sugarThat's because the diseases haven't stopped him from having a 5 yo's body. A diet of meat and vegetables won't be right for a 5 yo body.
> consumption. He never eats just one piece of candy or one
> blueberry. He eats the entire carton or a bouquet of lollypops
Little kids need quick energy because they have small stomachs and large energy needs. Even if he's not particularly active, his body is growing. Kids like sugar and carbohydrates not because their palates are unsophisticated but because their bodies are different from adults.
What about foods that are sweet but bulkier so he isn't getting as much sugar all at once? Like cookies. If gluten is a problem, there's recipes for alternative flours.
You and he might try keeping a journal -- though you'll probably do the bulk of the recording -- of what he eats, how much he sleeps, how he feels, and so on. Do it with the intention of noticing patterns with him as scientists do, not shaming him into eating a particular way.
Obviously what you're dealing with is something that the medical community doesn't know a lot about. They're doing a lot of guessing. They're saying "Try this. We think this might be a trigger." Then after a few years when they've seen the effects of their suggestion, after "rebels" have ignored them and tried other things, they may change their recommendations.
Joyce
Sandra Dodd
-=-I need to cook more with him. I am not good at it at all. I realize this might just be the best time in my life to learn, so thank you for the suggestion. I have to get excited about it -=-
If you feel that you "have to" get excited about it, you might avoid it.
If you consider it a choice, with alternatives, you will be more powerful and free.
http://sandradodd.com/haveto
Fear and a problem already entrap you somewhat. Loosen as much of the pressure and helplessness as you an.
Sandra
[Non-text portions of this message have been removed]
If you feel that you "have to" get excited about it, you might avoid it.
If you consider it a choice, with alternatives, you will be more powerful and free.
http://sandradodd.com/haveto
Fear and a problem already entrap you somewhat. Loosen as much of the pressure and helplessness as you an.
Sandra
[Non-text portions of this message have been removed]
Sandra Dodd
-=-I think it's highly unlikely that 'buckets of medication' is a better/more efficacious route.-=-
If a child isn't eating and a mother is stressed, medication might be better for a while.
If the mom doesn't even consider it, she's not making a responsible choice. If she doesn't consider it, she can't rationally decide against it.
-=-There is a way to work around the limitations so that it doesn't feel like deprivation to him.-=-
There *might* be. We don't know this boy, or this family.
Sandra
[Non-text portions of this message have been removed]
If a child isn't eating and a mother is stressed, medication might be better for a while.
If the mom doesn't even consider it, she's not making a responsible choice. If she doesn't consider it, she can't rationally decide against it.
-=-There is a way to work around the limitations so that it doesn't feel like deprivation to him.-=-
There *might* be. We don't know this boy, or this family.
Sandra
[Non-text portions of this message have been removed]
Meredith
Joyce Fetteroll <jfetteroll@...> wrote:
Be sure you're keeping track of good moments, days, moods as well as bad! Sometimes when people keep a health journal it's tempting to focus on the bad, especially when you're trying to figure out what to avoid, but it's just as important - and sometimes more so - to notice what better times have in common.
---Meredith
>> You and he might try keeping a journal -- though you'll probably do the bulk of the recording -- of what he eats, how much he sleeps, how he feels, and so on. Do it with the intention of noticing patterns with him as scientists do, not shaming him into eating a particular way.*************
Be sure you're keeping track of good moments, days, moods as well as bad! Sometimes when people keep a health journal it's tempting to focus on the bad, especially when you're trying to figure out what to avoid, but it's just as important - and sometimes more so - to notice what better times have in common.
---Meredith
Meredith
Anna-Marie <evolunacy@...> wrote:
That's important.
A lot of times adults who have struggled to find what's supportive and nourishing for them (whether food or exercise or spirituality or lifestyle choices or educational methods or whatever) then want to spread the joy. New unschoolers do it too ;) it's both natural and well-meaning. But there's a big, big difference between discovering what's wonderful for you and foisting that off on someone else.
I'm really good at solving problems - and it drove me nuts when my kids were little because I'd come up with Great solutions to things... only my kids didn't necessarily want My solutions. They wanted to learn and explore and work things out and come up with their own. If I tried to impose my idea, I'd run into resistance - and my kids can kick up a lot of resistance! But if I stepped back from the wonderfulness of my idea and focused on helping my kids explore, often we'd end up with my fantastic idea in the end anyway - but my kids were fine with it because they had been part of the process, and hadn't been pushed there.
---Meredith
>I am saying this as someone who has spentFor you.
> the past four years on a gluten/sugar/dairy free diet (due to serious
> health problems), and I have also spent the past year tapering off
> prescription medication.
That's important.
A lot of times adults who have struggled to find what's supportive and nourishing for them (whether food or exercise or spirituality or lifestyle choices or educational methods or whatever) then want to spread the joy. New unschoolers do it too ;) it's both natural and well-meaning. But there's a big, big difference between discovering what's wonderful for you and foisting that off on someone else.
I'm really good at solving problems - and it drove me nuts when my kids were little because I'd come up with Great solutions to things... only my kids didn't necessarily want My solutions. They wanted to learn and explore and work things out and come up with their own. If I tried to impose my idea, I'd run into resistance - and my kids can kick up a lot of resistance! But if I stepped back from the wonderfulness of my idea and focused on helping my kids explore, often we'd end up with my fantastic idea in the end anyway - but my kids were fine with it because they had been part of the process, and hadn't been pushed there.
---Meredith
Anna-Marie
Yes, for me.
I wholeheartedly agree with you that many times people who have
struggled to find what's supportive and nourishing for them attempt to,
as you say, foist that off on someone else, but that is not what I am
attempting to do here. It struck a chord, and I felt compelled to
respond due to the fact that I have been avoiding the same things. Do I
think that other people would benefit from avoiding sugar/gluten/dairy?
Sure. People can benefit from many different types of dietary changes,
and they find out for themselves what works best for them. I am not
trying to impose any ideas, but I am offering my perspective.
Anna-Marie
I wholeheartedly agree with you that many times people who have
struggled to find what's supportive and nourishing for them attempt to,
as you say, foist that off on someone else, but that is not what I am
attempting to do here. It struck a chord, and I felt compelled to
respond due to the fact that I have been avoiding the same things. Do I
think that other people would benefit from avoiding sugar/gluten/dairy?
Sure. People can benefit from many different types of dietary changes,
and they find out for themselves what works best for them. I am not
trying to impose any ideas, but I am offering my perspective.
Anna-Marie
>
>
> For you.
> That's important.
> A lot of times adults who have struggled to find what's supportive and
> nourishing for them (whether food or exercise or spirituality or
> lifestyle choices or educational methods or whatever) then want to
> spread the joy. New unschoolers do it too ;) it's both natural and
> well-meaning. But there's a big, big difference between discovering
> what's wonderful for you and foisting that off on someone else.
>
> I'm really good at solving problems - and it drove me nuts when my
> kids were little because I'd come up with Great solutions to things...
> only my kids didn't necessarily want My solutions. They wanted to
> learn and explore and work things out and come up with their own. If I
> tried to impose my idea, I'd run into resistance - and my kids can
> kick up a lot of resistance! But if I stepped back from the
> wonderfulness of my idea and focused on helping my kids explore, often
> we'd end up with my fantastic idea in the end anyway - but my kids
> were fine with it because they had been part of the process, and
> hadn't been pushed there.
>
> ---Meredith
>
>
>
>
>
Sandra Dodd
-=-Do I
think that other people would benefit from avoiding sugar/gluten/dairy?
Sure. People can benefit from many different types of dietary changes,
and they find out for themselves what works best for them.-=-
That's not about unschooling, though.
If you want to create a yahoogroup to discuss your views on diet as a primary focus, you can! It's easy to create a yahoogroup.
It's harder to keep one on topic.
Every single post should be about unschooling, from an unschooling point of view.
Sandra
[Non-text portions of this message have been removed]
think that other people would benefit from avoiding sugar/gluten/dairy?
Sure. People can benefit from many different types of dietary changes,
and they find out for themselves what works best for them.-=-
That's not about unschooling, though.
If you want to create a yahoogroup to discuss your views on diet as a primary focus, you can! It's easy to create a yahoogroup.
It's harder to keep one on topic.
Every single post should be about unschooling, from an unschooling point of view.
Sandra
[Non-text portions of this message have been removed]
Meredith
Anna-Marie <evolunacy@...> wrote:
---Meredith
> I wholeheartedly agree with you that many times people who haveWhen parents try to give the same wisdom they've discovered to their kids, it often feels to the kids like foisting. Kids are people - but they're people who are in a very delicate situation, subject to the whims and pressures and expectations of bigger, stronger people with more rights and capabilities.
> struggled to find what's supportive and nourishing for them attempt to,
> as you say, foist that off on someone else, but that is not what I am
> attempting to do here.
>>People can benefit from many different types of dietary changes,Kid-people too. That's the point ;) It doesn't have to be all by themselves - just like adults, kids learn from friends and people they respect and admire. Part of unschooling is learning to become the kind of friend your children respect and admire.
> and they find out for themselves what works best for them
---Meredith