DiamondAir

--- Annette Yunker <amyunker@...> wrote:
>
> My three children and I are hypoglycemic (largely
> due to hyperinsulinemia). We became severely ill,
> run-down, hyperacidic, et on frequent protein
> snacks, as these are acid-producing either in and of
> themselves or as a by-product of digestion. We now
> take green barley juice which neutralizes the blood
> sugar instantaneously, provides chlorophyll, 92 vitamins
> and minerals and live enzymes


Wow, this is interesting! My son who is mildly hypoglycemic (has wild mood
swings, for one thing, if his blood sugar is not evened out) loves and
craves "green" juice! Maybe his body intuitively knows what is best for him.
I like it too, but I have a weird stomach and almost all the brands I've
tried just tie it up in knots.

> I have always maintained that
> when "normal" interaction with children does not
> have the "normal" or customary result, there is
> usually something else going on, and the customary
> measures will not work in these situations. Those
> who do not have extraordinary children often do not
> understand why the routine measures they take with
> great success will not work for everybody else.


LOL, ain't this is the truth! I'm on a "due date list" for each of my kids
where all the babies were due in the same month and the solutions that they
have suggested like "sing a special song to make teeth brushing time fun"
just always baffled me. My son (before we figured out how to eliminate most
of his sensory issues) equated teeth brushing to being branded with hot
irons and no amount of special songs was going to change that perception. It
took a heck of a lot of creativity, time, energy, etc. to get through even
the tiniest simplest every day routines. Whew! Exhausting. Now that I have
my daughter, I understand why they made those suggestions. Not that she
isn't challenging in her own ways (mostly because, like her mother, she's a
fireball, a climber, a daredevil), but in every day life, things are pretty
darn easy. When it's time to put shoes on, she sits down and puts her shoes
on. No screaming about "sock squishies!!!!". When it's time to wash her
hair, she puts her head back and lets me do it. I feel so bad for my son
that everything had to be so much harder for him than for average kids. I
can also see how kids like this can raise the level of stress in parenting
to a high that most folks will never understand. When it literally takes an
hour to get your kid dressed in the morning because of all the "issues", it
can try the patience of even a saint! And of course everyone has opinions
about how you're "coddling" them and "catering" to their wishes, because
they don't understand how very hard things are for a kid with differing
abilities. I used to think that if my son was paralyzed in a wheelchair,
no-one would be insisting that I force him to dress himself with his wasted
limbs, but because he has these invisible coordination problems, they
somehow think I should be pushing him to do something he simply cannot do.
Ditto with potty training and a million other issues.


And Eileen writes:

>I think that this is true. I think it is hard for
>people with 'normal' kids to understand that tactics
>have to be changed for a child whose reactions to
>normal stimuli are counter-intuitive. Finding a way
>to convey love to a baby or child who hates to be
>cuddled or touched at all is a challenge most people
>would have trouble even imagining.


This is so true. I remember valiantly starting off with my "baby massage"
book in hand to rub my infant, expecting him to look like these blissed-out
babes in the pictures. Imagine my surprise when he arched his little back
and screamed. Parenting him was like learning to be a parent, and also
learning that almost none of the currently available parenting advice
worked, all in one fell swoop. I was so grateful that we were really closely
attached from birth because it gave me a basis of trust and intuition to
start from, at least.


>These sorts of
>differences can have a global effect on family
>interactions difficult to comprehend from the outside;
>most friends we know with 'special' kids find
>themselves the target of well meaning 'advice' that
>borders on abuse with fair regularity.

Yeah, I got a lot of that too. Most people can't understand how something so
simple for most kids can strike terror into the heart of a kid with
differing sensitivities.

Blue Skies!
-Robin-
Mom to Mackenzie (8/28/96) inventer of new and wonderful things
and Asa (10/5/99) singer of protest songs
http://www.geocities.com/the_clevengers Flying Clevenger Family

Eileen M.

And people interpret what your kid is doing so
unfairly, too! I couldn't get my son's preschool
teacher to understand that it was *her* reaction to
him that was causing my son to lash out at other
kids... she was stressing him out so badly by
expecting him to do things he *couldn't* do, while not
allowing him to do the things he did well. I knew
better than to tell her that, but she was totally
resistant to suggestions that she give him positive
feedback and opportunities to limit sensory input.
She kept talking about trying to get him to be like
the other kids by just *expecting* him to behave the
same way. Clueless...

And I remember going through the *exact* same thing
with the baby massage! Lol!

Eileen

--- DiamondAir <diamondair@...> wrote:
And of course
> everyone has opinions
> about how you're "coddling" them and "catering" to
> their wishes, because
> they don't understand how very hard things are for a
> kid with differing
> abilities. I used to think that if my son was
> paralyzed in a wheelchair,
> no-one would be insisting that I force him to dress
> himself with his wasted
> limbs, but because he has these invisible
> coordination problems, they
> somehow think I should be pushing him to do
> something he simply cannot do.
> Ditto with potty training and a million other
> issues.
>

> This is so true. I remember valiantly starting off
> with my "baby massage"
> book in hand to rub my infant, expecting him to look
> like these blissed-out
> babes in the pictures. Imagine my surprise when he
> arched his little back
> and screamed. Parenting him was like learning to be
> a parent, and also
> learning that almost none of the currently available
> parenting advice
> worked, all in one fell swoop. I was so grateful
> that we were really closely
> attached from birth because it gave me a basis of
> trust and intuition to
> start from, at least.
>
>
> >These sorts of
> >differences can have a global effect on family
> >interactions difficult to comprehend from the
> outside;
> >most friends we know with 'special' kids find
> >themselves the target of well meaning 'advice' that
> >borders on abuse with fair regularity.
>
> Yeah, I got a lot of that too. Most people can't
> understand how something so
> simple for most kids can strike terror into the
> heart of a kid with
> differing sensitivities.


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