talking to concerned doctors, and dentists
lisajceledon@...
My remaining question now (since I've gathered enough ideas about things to try to last me a little while), is about how to handle medical professionals (also, dentists), when your child presents a lot of developmental characteristics that are considered to require specialized evaluation and support and treatment. Every time I have taken Kaiden in to see a doctor, they are so preoccupied with his development being atypical, that they ignore or get sidetracked from the medical (or dental) issue I am seeking treatment for for him, instead focusing on getting his development evaluated and treated, and treating the health concerns as secondary.
I think part of it is that the children are on medi-cal, and there is a push (in the county we live, at least, not sure what it is like elsewhere), to have low-income children evaluated for learning disabilities and developmental disorders, and educating the parents about them, and ensuring their children receive services if they need them. I think, to the doctors at the clinic we've been going to, this is a clear case of a parent being in denial that professional services are necessary.
I am feeling overwhelmed and doubtful, because it keeps coming up, and I don't know what to say to doctors/dentists. He broke a tooth at the end of last year and has extensive decay through some of his top teeth, including two molars. He has seen two dentists since, and the second one said outright that the decay in his mouth is causing speech delay and developmental delay. We hadn't discussed that he had any developmental delays, though the fact that his speech and socialization is atypical for his age is obvious. She didn't give me any real information (I looked it up, and couldn't find any real evidence that there are real, proven links between developmental delays and tooth decay. I mean, google has limits, I think, so I could just not have found that information)-- and I don't feel like I have enough information to make a sound decision about what to do for his teeth. Both dentists said that he would need extensive work under GA.
But I feel like I don't really have an idea of how necessary it is. I do know it will be a very big deal for him. He is very fearful of doctors and has difficulty getting weighed and measured and his eyes and ears checked for regular check ups (mostly hides his face and clings to me and cries-- my older son was always like this as well). I don't want him to go through a big medical procedure and all that is involved with going under anesthesia (like, not being able to eat or drink or nurse before hand, and not being able to understand why, as one example) if it is not necessary for his health and well-being. If it *is* necessary, then it is a matter of supporting him through it as best I can.
My main concern is if it is causing him discomfort or pain-- but it's hard to tell whether or not that is the case, and both dentists both said something along the lines of, of course it's causing him pain, and even if it's not, it's still a big huge problem. The first dentist very pointedly said that pain from tooth decay causes behavioral issues and attention deficits. Both of them also said that the work would be rendered useless if a strict regimen of dental care and diet was not also followed (a regimen I know he will not be willing or able to adhere to anything but loosely).
I don't want him to be in pain or to be suffering because of his teeth. I do know that he no longer wants to brush his teeth in the front (so I've been adding xylitol to his water during the day, which he likes, and also rinsing with it at night when he's willing) and I feel like the information being given to me by the professionals is potentially misguided, or inaccurate, and I'm not sure I can trust it. Both dentists, though pediatric dentists, seemed very thrown off by his being less than perfectly cooperative-- though he was much more cooperative with both of them than I expected (especially the second time! My five year old wouldn't have been willing to cooperate as much) and behaved respectfully in both of their offices, and very much totally in line with what can be expected from many children his age.
Part of my fear about *not* doing anything is of appearing neglectful-- both in terms of his teeth and his development--to medical professionals--especially since both issues are obvious and apparent/visible (I feel like, it looks like a double whammy, or that one confirms the other is a Big Problem). What can I say to the doctors and such when they say things like, you need to have his development evaluated, or, it seems like he might have a developmental problem, or What are you doing about his speech delay? You need to be on this right now, this is a big problem (that was one of the dentists, actually-- and to him I just lied. I said I was in contact with a specialist. I mean, I have since *contacted* a specialist, so, there's that. I just left out the 'planning to' part).
Because of Kai's fear of being at the doctors, the stress it causes him, the concerns it causes them that he isn't developing 'on schedule', I have not kept up with his regular check-up appointments (though we did make follow up visits when there was a health problem), and have been looking for a new doctor. I feel like that reflects poorly too, though, not having kept them up. I think I'm second guessing myself a lot lately, feeling thrown off perhaps and overwhelmed by Kaiden's shift into tantruming so much.
I have asked for pediatrician recommendations from locals but haven't come up with any leads that are covered by his insurance-- I think I need to learn to speak to the doctors regardless, and be more calm about all of it. I want to be a good advocate for him, while also being respectful and not drawing undue attention or suspicion to the ways in which we're not 'running on the treadmill' as someone put it recently (sorry, I forget who wrote it, it was in one of the Always Learning discussions last year). I have not always been a good advocate for my children or myself, and I want to learn to do it better.
Thank you,
Lisa C
K Pennell
From: "lisajceledon@... [AlwaysLearning]" <[email protected]>
To: [email protected]
Sent: Tuesday, February 10, 2015 2:25 AM
Subject: [AlwaysLearning] talking to concerned doctors, and dentists
I have a few questions (doubts? insecurities?) relating to my younger son, Kaiden, and as I was writing them out (a few attempts, over the last few weeks), I did end up answering a lot of my own questions about some things to try, and possible solutions. I'm still feeling overwhelmed by his behavior lately; he's clearly made some shifts developmentally and has been having really intense tantrums several times daily-- it's taking me time to sort out where and how his needs have changed, and to recognize where my expectations needed a major adjustment.
My remaining question now (since I've gathered enough ideas about things to try to last me a little while), is about how to handle medical professionals (also, dentists), when your child presents a lot of developmental characteristics that are considered to require specialized evaluation and support and treatment. Every time I have taken Kaiden in to see a doctor, they are so preoccupied with his development being atypical, that they ignore or get sidetracked from the medical (or dental) issue I am seeking treatment for for him, instead focusing on getting his development evaluated and treated, and treating the health concerns as secondary.
I think part of it is that the children are on medi-cal, and there is a push (in the county we live, at least, not sure what it is like elsewhere), to have low-income children evaluated for learning disabilities and developmental disorders, and educating the parents about them, and ensuring their children receive services if they need them. I think, to the doctors at the clinic we've been going to, this is a clear case of a parent being in denial that professional services are necessary.
I am feeling overwhelmed and doubtful, because it keeps coming up, and I don't know what to say to doctors/dentists. He broke a tooth at the end of last year and has extensive decay through some of his top teeth, including two molars. He has seen two dentists since, and the second one said outright that the decay in his mouth is causing speech delay and developmental delay. We hadn't discussed that he had any developmental delays, though the fact that his speech and socialization is atypical for his age is obvious. She didn't give me any real information (I looked it up, and couldn't find any real evidence that there are real, proven links between developmental delays and tooth decay. I mean, google has limits, I think, so I could just not have found that information)-- and I don't feel like I have enough information to make a sound decision about what to do for his teeth. Both dentists said that he would need extensive work under GA.
But I feel like I don't really have an idea of how necessary it is. I do know it will be a very big deal for him. He is very fearful of doctors and has difficulty getting weighed and measured and his eyes and ears checked for regular check ups (mostly hides his face and clings to me and cries-- my older son was always like this as well). I don't want him to go through a big medical procedure and all that is involved with going under anesthesia (like, not being able to eat or drink or nurse before hand, and not being able to understand why, as one example) if it is not necessary for his health and well-being. If it *is* necessary, then it is a matter of supporting him through it as best I can.
My main concern is if it is causing him discomfort or pain-- but it's hard to tell whether or not that is the case, and both dentists both said something along the lines of, of course it's causing him pain, and even if it's not, it's still a big huge problem. The first dentist very pointedly said that pain from tooth decay causes behavioral issues and attention deficits. Both of them also said that the work would be rendered useless if a strict regimen of dental care and diet was not also followed (a regimen I know he will not be willing or able to adhere to anything but loosely).
I don't want him to be in pain or to be suffering because of his teeth. I do know that he no longer wants to brush his teeth in the front (so I've been adding xylitol to his water during the day, which he likes, and also rinsing with it at night when he's willing) and I feel like the information being given to me by the professionals is potentially misguided, or inaccurate, and I'm not sure I can trust it. Both dentists, though pediatric dentists, seemed very thrown off by his being less than perfectly cooperative-- though he was much more cooperative with both of them than I expected (especially the second time! My five year old wouldn't have been willing to cooperate as much) and behaved respectfully in both of their offices, and very much totally in line with what can be expected from many children his age.
Part of my fear about *not* doing anything is of appearing neglectful-- both in terms of his teeth and his development--to medical professionals--especially since both issues are obvious and apparent/visible (I feel like, it looks like a double whammy, or that one confirms the other is a Big Problem). What can I say to the doctors and such when they say things like, you need to have his development evaluated, or, it seems like he might have a developmental problem, or What are you doing about his speech delay? You need to be on this right now, this is a big problem (that was one of the dentists, actually-- and to him I just lied. I said I was in contact with a specialist. I mean, I have since *contacted* a specialist, so, there's that. I just left out the 'planning to' part).
Because of Kai's fear of being at the doctors, the stress it causes him, the concerns it causes them that he isn't developing 'on schedule', I have not kept up with his regular check-up appointments (though we did make follow up visits when there was a health problem), and have been looking for a new doctor. I feel like that reflects poorly too, though, not having kept them up. I think I'm second guessing myself a lot lately, feeling thrown off perhaps and overwhelmed by Kaiden's shift into tantruming so much.
I have asked for pediatrician recommendations from locals but haven't come up with any leads that are covered by his insurance-- I think I need to learn to speak to the doctors regardless, and be more calm about all of it. I want to be a good advocate for him, while also being respectful and not drawing undue attention or suspicion to the ways in which we're not 'running on the treadmill' as someone put it recently (sorry, I forget who wrote it, it was in one of the Always Learning discussions last year). I have not always been a good advocate for my children or myself, and I want to learn to do it better.
Thank you,
Lisa C
Sarah Thompson
How are you responding to their efforts to code him, verbally and non-verbally? Is there a way to help them see that you are aware of who your son is amd the ways in which he may differ from his peers, but that you homeschool and therefore do not focus on coding but rather on responding to him, one on one, where he is? Maybe help them see how he is getting the ultimate in customized care. Since medical professionals have been made an arm of cps, they can be blinded by their mission.
Sarah
Joyce Fetteroll
> On Feb 10, 2015, at 8:12 AM, Sarah Thompson thompsonisland@... wrote:What is "code him"? What's the plain English version?
>
> How are you responding to their efforts to code him, verbally and non-verbally?
> Is there a way to help them see that you are aware of who your son isConfidence is a huge help. As is telling them as little as possible. There's no need to get doctors to understand what you're doing but you want them to feel confident that you're aware. Accept suggestions. If it will soothe a doctor's fears, write down recommendations. Tell them you'll look into it.
Be aware they're trying to help. They're offering information they believe will help with a situation you may not understand.
They are also coming from a point of view of preparing kids to do well in school. Some concerns you might be able to answer with "In school that would be an issue. Since we're working one on one it isn't causing a problem yet. But I'm aware and keeping an eye on it."
Joyce
Sarah Thompson
Coding is what they call it in schools when kids are designated as entitled to special services. It's a real term in school-world, as far as I know.
Sarah
Lisa J Celedon
Sandra Dodd
Problem.
There is nothing that "they" say in ALL schools.
Terminology like this, and laws, are different in different places.
It's just ONE of the reasons I would rather keep the questions and discussions here general and philosophical. Anything very particular to one province, district, state or country should be discussed on a more local group. And people should be aware that what is "truth" and "fact" and "real term" is not universal.
Sandra
Sarah Thompson
Okay. "Labeled as qualifying for special services from the state."
Sarah
On Feb 10, 2015 3:08 PM, "Sandra Dodd Sandra@... [AlwaysLearning]" <[email protected]> wrote:-=-Coding is what they call it in schools when kids are designated as entitled to special services. It's a real term in school-world, as far as I know.-=-
Problem.
There is nothing that "they" say in ALL schools.
Terminology like this, and laws, are different in different places.
It's just ONE of the reasons I would rather keep the questions and discussions here general and philosophical. Anything very particular to one province, district, state or country should be discussed on a more local group. And people should be aware that what is "truth" and "fact" and "real term" is not universal.
Sandra
heatherpie@...
I think the best thing I do when we go to the doctor and they are recommending things I am unsure of is to ask a lot questions. If Austin is scared of a procedure I let his doctors know that and ask for ways to make it less scary. I think if they feel I am well informed when I say "No thanks." they are less concerned.
If you're at the doctors for a cold and they want to talk about developmental delays a firm, but polite, "I appreciate your concern, but right now I want to get him well. Can we talk about developmental stuff at our next visit?" should be enough to bring it back to why you are there.
Knowing what answers they are looking for is helpful. We had a urologist who was asking a lot about what our day looked like. I thought it was going to be another session of "ask the homeschooler", but turns out he was asking because urologist like for kids to be on a pee schedule. Once I caught on I was able to give a light, vague answer that satisfied him so we could move on.
Austin has six baby teeth that need to be pulled. We went to several dentists before we found one who was willing to take small steps, go at Austin's pace, and stop when he needed her too. We were told by a previous dentist that Austin had to have extensive work done on his teeth under general anesthesia and was unwilling to look at other options. Our current dentist really understood the importance of gaining Austin's trust and has done a couple small cleanings and is talking to Austin about taking those teeth out, but isn't pressuring or scaring him.
I know it's hard to take a kid who doesn't like doctor doctor shopping, but would he be more willing to go if he got something afterwards? Could you interview some doctors without him to get a feel for if you can have a working relationship with them? As a mom of a child who needs to go to the doctor often I've found having doctors we trust and aren't scared of to be very important.
Heather