[email protected]

This is what I'm experiencing too. I felt so awful the first couple weeks of
March. I've always had fatigue and pain and have just gotten use to them. I
went in 2 yrs ago and the doctor I saw was almost hostile towards me so I never
went back. But then I started having worse symptoms and decided it was time to
go in again. The first time I saw the doctor I was in severe pain and also
almost felt drunk and I thought wow he really cares. But the next time I saw
him I was feeling much better and clear headed and realized that he was doing
all the talking and hardly listening, so how could he be really caring about
me? Does this make sense? I'm starting to feel crappy again and having
problems writing cohertenly. This is all pretty scary and I feel really lost
without a diagnosis. It'd be so much easier to find support if I knew what was
wrong with me. It's hard too with my husband probably originally thinking it
was all in my head (though he didn't say so), to now worrying if I'm going to
be able to take care of the kids. I'd like to thank everyone here who took the
time to answer my original post and I'm sorry to bring this issue here to the
unschooling board, but so far this has been my best support system. So thanks
again.



> In a message dated 3/30/00 6:30:53 AM Central Standard Time,
> klement@... writes:
>
> << I've heard
> accounts of the same balderdash being spewed from neurologists to their
> patients, from many many MS sufferers on the support newsgroups >>
> Buzz,
> I have to add my 2 cents worth here. I back up every word you've said about
> this. It is exactly the same for lupus. It's known as the great imitator
> because it can look like so many other things. From the time symptoms appear
> until lupus is diagnosed is an average of 7 years. Patients are often made
> to feel that it's all in their heads. My lupus involves my central nervous
> system and so it almost perfectly mimics MS. I went through the wringer with
> doctors looking my MRIs over and telling me that there was nothing wrong with
> me. They said that my loss of vision (actually optic neuritis, of course)
> and my numbness and weakness were just manifestations of hysteria. I began
> to feel terrible about myself and to question my own sanity. Turns out I was
> right and they were wrong. (blowing big raspberries here...)
>
> Anyone who is searching for a diagnosis needs to know that they should RUN,
> not walk from these patronizing, consdescending creeps.
>
>
>
> *** KiM ***
> runs with scissors
>
>
>
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Kim,
Please read my post on Chronic Fatigue. You may have a different dx, but
it could also be treated well thru homeopathy if you are interested. Sorry I
didn't include your name in the post, I did not realize you were also ill.
Sorry! jackie

K WORTHEN

Hi Tammy,
Sorry I'm responding to this post so long after the fact,
but I had to put my 2 cents in. I was diagnosed with fibromyalga (sp?) last
summer, after years of suffering with some of the symptoms from time to
time. Fortunatly, for me, I found a great rhumatologist, who actually
believes every word I say. How's that for a rare doctor? Anyhow , you said
that doctors won't see you unless you take all previous records with you. My
question is why do they have to know who you've seen in the past and who you
haven't? Couldn't you, for example, go to a new rhumatologist and start from
scratch. You could tell him all of your symptoms and let him decide if he
feels he can either make a diagnosis on his own or send you to a
neurologist. I know this isn't the most honest approach and is fround upon
in the medical circles, but my feeling is, if it gets you the help you need
in the end it will all be worth it. As you know, diagnosing any autoimmune
disorder can be a painstaking proccess, but I've known so many people,
myself included that in the end were so glad they stuck with it. Sometimes
just knowing what you have can change your outlook. Anyhow, good luck and
please keep me posted.
Amy

----- Original Message -----
From: <FreeSchool@...>
To: <[email protected]>
Sent: Saturday, April 01, 2000 1:52 AM
Subject: Re: Fibro,Lupus,Chronic Fatigue,MS was Re: [Unschooling-dotcom]


> In a message dated 3/31/00 9:36:46 AM Central Standard Time,
> klement@... writes:
>
> << will tell you this though ... the majority of auto immune disorder
> patients I've had personal contact with have had to fight like hell to
> be treated decently and honestly.
> An informed patient has to tread carefully so as not to bruise doctors'
> egos and get the treatment they deserve!!!!!! >>
>
> Buzz,
> I agree, that is why I have given up for the time being! The last
time I
> went to see a "specialist" that my family doctor referred me to, he gave
me
> all of 10 minutes of his time. He said to me"Well, if I just looked at
your
> history, I would say it was MS.
> However, the neurologist (the one that was a jerk!) said that you don't.
> Therefore, I don't see any reason to have an MRI, because you don't have
MS.
> It worries me that you have _______ with this, as this is usually
indicative
> of MS. But once again, I just don't think it is because the neurologist
said
> that you don't have it. I think you should start looking in another
> direction. I can't help you." That was the last straw for me.
Basically,
> he took one persons word (who believe me was such a jerk, that I would
never
> want to mess with her again) and refused to even examine me. It didn't
> matter that family went with me and tried to tell him how I am really
sick,
> he just didn't want to take the time. If only I could see someone without
> taking the records from that one doctor, however, they won't ever see me
> unless I forward everything! That one doctor is really hurting my case.
I
> need to start off fresh, but it just won't happen. I am so tired of
beating
> my head against a brick wall! Well, sorry to go off like that, but this
> subject is very touching to me. Right now I am furious at doctors!
> Tammy
>
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