susan

hi,

they aren't really sure what the problem is.   i was diagnosed with still's disease, an autoimmune disease which is kind of a cross between rheumatoid arthritis and lupus, though i tested neg. for everything, my blood work was really wacky.  i've seen 30 (+ or -) drs and they all told me to go home because they don't know what to do with me.  they said only come back if i need to be hospitalized.  i guess i have symptom similar to cf but i've had symptoms of hepatitis - one of the first diagnosis but tested neg.   all i know was after having rene' it took me a long time to get my energy back even though he was a really easy baby.  we were just planning on trying for a second kid (rene' was 20 mo) when one day i was feeling particularly great,  i sat do to eat and couldn't get up.   i had to crawl to the phone and call my dh to come home (he didn't return to work for over a month and then it was just part time).  i've never gotten my health back.  i lost 20 lbs in three wks nearly all the muscles in my shoulders were destroyed, i'm still not able to write (typing is easier) for very long.  i'm constantly exhausted.  i'm seeing an acupuncturist and she said my kidney qi is exhausted and that's why i miscarried i simply didn't have the energy to hold the pregnancy.  anyway i would be interested in the article since my diagnosis is very iffy.  i appreciate you thinking of me.

-susan
austin,tx
'unity through diversity'

kayelle42@... wrote:

From: kayelle42@...

  Susan,
   Hi!  I was wondering [  I know sometimes I get confused }- do you have
Chronic Fatigue?  The reason I'm asking is because I remember reading here
that someone does and I was wondering if it was you.  I just read an
interesting article about CF and I wanted to share it with the right person.
Hope you're having a good day!  jackie

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Susan,
Hi! I was wondering [ I know sometimes I get confused }- do you have
Chronic Fatigue? The reason I'm asking is because I remember reading here
that someone does and I was wondering if it was you. I just read an
interesting article about CF and I wanted to share it with the right person.
Hope you're having a good day! jackie

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Jackie,
I had posted to someone on the list about my sister who has Cfids, so maybe
that was me you saw, I would be interested in the article to pass it on to
her if you don't mind. : )
thanks,
Teresa

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In a message dated 3/29/00 2:34:11 PM Central Standard Time,
kayelle42@... writes:

<< Hi! I was wondering [ I know sometimes I get confused }- do you have
Chronic Fatigue? The reason I'm asking is because I remember reading here
that someone does and I was wondering if it was you. I just read an
interesting article about CF and I wanted to share it with the right person.

Hope you're having a good day! >>


Jackie,
It has been a few weeks since my last post, but I have Chronic Fatigue
Syndrome and Fibromyalgia. I am not sure if you are thinking about me or
not, since I do remember discussing this with a few people on this loop.
Perhaps Susan also has this, I don't remember what she said her illness was.
I would be very interested in reading the article though, if you wouldn't
mind sending it to me. My e-mail address is FreeSchool@...
Thanks,
Tammy