Re: Uncomfortable in/fear of public places
Leslie Kowalski
Kelly,
I would say that the "extra" issues of TS, particularly the anxiety
component, is harder for Tess than the tics (the ADHD component
(undiagnosed) is harder for me - LOL!). Most people I've met with TS
kids will say the same thing (that the extras are worse than the
tics). I've said to people that if I had a magic wand and was told I
could only help with one problem, I would help the anxiety before the
tics. Although, this week as her head/neck snapping tic is starting
to ramp up (after having been dormant for a few months), I could be
persuaded to change the issue I most want to help her with.
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
=========
Leslie,
I understand about the one step forward and two steps back. I live it
with my 7 year old every day. She has NLVD, TS, SPD, and ADHD. Does
the Tourettes affect your daughter a lot? Obviously the Anxiety is a
big issue for your daughter. I'm trying to figure out how hard the
Tourette's is for my daughter, but I think it kind of takes a back
seat to all the other issues. Luckily we have not had other kids make
fun of her (up to this point) about the TS........although some of
her tics a lot of adults and kids would not recognize as a tic. Her
eye tic (eye twitching) makes it real obvious she has TS.
Kelly
==========
[Non-text portions of this message have been removed]
I would say that the "extra" issues of TS, particularly the anxiety
component, is harder for Tess than the tics (the ADHD component
(undiagnosed) is harder for me - LOL!). Most people I've met with TS
kids will say the same thing (that the extras are worse than the
tics). I've said to people that if I had a magic wand and was told I
could only help with one problem, I would help the anxiety before the
tics. Although, this week as her head/neck snapping tic is starting
to ramp up (after having been dormant for a few months), I could be
persuaded to change the issue I most want to help her with.
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
=========
Leslie,
I understand about the one step forward and two steps back. I live it
with my 7 year old every day. She has NLVD, TS, SPD, and ADHD. Does
the Tourettes affect your daughter a lot? Obviously the Anxiety is a
big issue for your daughter. I'm trying to figure out how hard the
Tourette's is for my daughter, but I think it kind of takes a back
seat to all the other issues. Luckily we have not had other kids make
fun of her (up to this point) about the TS........although some of
her tics a lot of adults and kids would not recognize as a tic. Her
eye tic (eye twitching) makes it real obvious she has TS.
Kelly
==========
[Non-text portions of this message have been removed]
Kelly Weyd
I think your sister is a wise woman and hit the nail on the head. I think it's true for my daughter too. Having SPD and TS my daughter certainly is not comfortable in her own body.........and the other issues don't help that either.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
Kelly,
I would say that the "extra" issues of TS, particularly the anxiety
component, is harder for Tess than the tics (the ADHD component
(undiagnosed) is harder for me - LOL!). Most people I've met with TS
kids will say the same thing (that the extras are worse than the
tics). I've said to people that if I had a magic wand and was told I
could only help with one problem, I would help the anxiety before the
tics. Although, this week as her head/neck snapping tic is starting
to ramp up (after having been dormant for a few months), I could be
persuaded to change the issue I most want to help her with.
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
=========
Leslie,
I understand about the one step forward and two steps back. I live it
with my 7 year old every day. She has NLVD, TS, SPD, and ADHD. Does
the Tourettes affect your daughter a lot? Obviously the Anxiety is a
big issue for your daughter. I'm trying to figure out how hard the
Tourette's is for my daughter, but I think it kind of takes a back
seat to all the other issues. Luckily we have not had other kids make
fun of her (up to this point) about the TS........although some of
her tics a lot of adults and kids would not recognize as a tic. Her
eye tic (eye twitching) makes it real obvious she has TS.
Kelly
==========
[Non-text portions of this message have been removed]
---------------------------------
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[Non-text portions of this message have been removed]
kelly
Leslie Kowalski <lrkowalski@...> wrote:
Kelly,
I would say that the "extra" issues of TS, particularly the anxiety
component, is harder for Tess than the tics (the ADHD component
(undiagnosed) is harder for me - LOL!). Most people I've met with TS
kids will say the same thing (that the extras are worse than the
tics). I've said to people that if I had a magic wand and was told I
could only help with one problem, I would help the anxiety before the
tics. Although, this week as her head/neck snapping tic is starting
to ramp up (after having been dormant for a few months), I could be
persuaded to change the issue I most want to help her with.
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
=========
Leslie,
I understand about the one step forward and two steps back. I live it
with my 7 year old every day. She has NLVD, TS, SPD, and ADHD. Does
the Tourettes affect your daughter a lot? Obviously the Anxiety is a
big issue for your daughter. I'm trying to figure out how hard the
Tourette's is for my daughter, but I think it kind of takes a back
seat to all the other issues. Luckily we have not had other kids make
fun of her (up to this point) about the TS........although some of
her tics a lot of adults and kids would not recognize as a tic. Her
eye tic (eye twitching) makes it real obvious she has TS.
Kelly
==========
[Non-text portions of this message have been removed]
---------------------------------
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in 45,000 destinations on Yahoo! Travel to find your fit.
[Non-text portions of this message have been removed]
Leslie Kowalski
I'm remembering now that I misquoted her a bit, she actually said
that Tess can't feel comfortable in the world because her body
betrays her. I thought that was even more poignant than what I wrote
before. I really have to remember this more often when I start to
feel frustrated!
Leslie
=====================
I think your sister is a wise woman and hit the nail on the head. I
think it's true for my daughter too. Having SPD and TS my daughter
certainly is not comfortable in her own body.........and the other
issues don't help that either.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
[Non-text portions of this message have been removed]
that Tess can't feel comfortable in the world because her body
betrays her. I thought that was even more poignant than what I wrote
before. I really have to remember this more often when I start to
feel frustrated!
Leslie
=====================
I think your sister is a wise woman and hit the nail on the head. I
think it's true for my daughter too. Having SPD and TS my daughter
certainly is not comfortable in her own body.........and the other
issues don't help that either.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
[Non-text portions of this message have been removed]
Kelly Weyd
Yes, I agree it is more poignant, and soooo true.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
I'm remembering now that I misquoted her a bit, she actually said
that Tess can't feel comfortable in the world because her body
betrays her. I thought that was even more poignant than what I wrote
before. I really have to remember this more often when I start to
feel frustrated!
Leslie
=====================
I think your sister is a wise woman and hit the nail on the head. I
think it's true for my daughter too. Having SPD and TS my daughter
certainly is not comfortable in her own body.........and the other
issues don't help that either.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
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kelly
Leslie Kowalski <lrkowalski@...> wrote:
I'm remembering now that I misquoted her a bit, she actually said
that Tess can't feel comfortable in the world because her body
betrays her. I thought that was even more poignant than what I wrote
before. I really have to remember this more often when I start to
feel frustrated!
Leslie
=====================
I think your sister is a wise woman and hit the nail on the head. I
think it's true for my daughter too. Having SPD and TS my daughter
certainly is not comfortable in her own body.........and the other
issues don't help that either.
kelly
Leslie Kowalski <lrkowalski@...> wrote:
People do notice her tics sometimes (especially the verbal ones like
grunting or a sound that is a bit like a laugh), but most of the time
she can remind people that they are tics, which is great. I do think
that her anxiety is related to her tic intensity (or even a pre-
cursor for when tics are starting to come back). My sister once said
to me that if she doesn't feel comfortable in her own body, how
comfortable can she feel in the world.
Leslie
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